Palavras-chave
cuidados paliativos
fim de vida
sistema de saúde
Como Citar
Resumo
Resumo: Objetivo: identificar e analisar as experiências e as opiniões que pacientes oncológicos sem opção curativa têm a respeito do sistema de saúde sobre seus cuidados paliativos e desejos de fim de vida.
Métodos: estudo qualitativo com perspectiva crítico-construtivista. Foram analisadas 22 entrevistas em profundidade a pacientes entre 28 e 78 anos, os quais tinham alguns dos cânceres mais frequentes (mama, colo do útero, cólon, estômago, com expectativa de vida entre seis e 12 meses) atendidos no Hospital Universitario San José de Popayán, no Hospital Universitario San Ignacio e no Instituto Nacional de Cancerología em Bogotá, Colômbia.
Resultados: foram identificadas duas categorias de experiências e desejos dos pacientes: uma sobre o atendimento e as informações que desejam receber da equipe de saúde e outra relacionada com o sistema de saúde, que inclui problemas administrativos com as instituições prestadoras de serviços de saúde (EPS, na sigla em espanhol), com a importância de oferecer continuidade na atenção médica, a oportunidade na entrega de medicamentos e a marcação de consultadas, bem como com a infraestrutura hospitalar dirigida à instituição onde desejam ser atendidos.
Conclusões: os resultados deste estudo contribuem para o entender as experiências que os pacientes com câncer incurável vêm tendo com o sistema de saúde. É necessário educar a equipe de saúde sobre a necessidade de questionar e discutir os desejos dos pacientes para oferecer ajuda pertinente que otimize sua qualidade de vida. Deve-se melhorar a infraestrutura dos centros de cuidados paliativos e de pronto-atendimento, o agendamento de consultas e a entrega oportuna de medicamentos.
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Copyright (c) 2022 Esther De Vries, Mauricio Medina-Rico, Socorro Moreno