The experience of living with Colorectal Cancer: Repercussions in the everyday life and in the health care processes in Colombia
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Introduction: Chronic diseases and in particular colorectal cancer (CRC) accrue into a critical life experience, since the disease invades and crumbles the everyday life spheres, as well as the identity of the sufferer and his family.
Objectives: To understand the meanings of the experience of the everyday life, as well as that of the health care received, of those diagnosed with colorectal cancer.
Methods: A phenomenological study was carried out by applying in-depth interviews to twelve individuals diagnosed with CRC. It allowed us to identify sense and meaning units in regard to the experience of living with the disease.
Results: Four thematic categories emerged: 1) The self-recognition of one's own history; 2) the right to health as human dignity axis; 3) the multiple struggles to deal with CRC; and 4) cancer as renaissance towards lifespan comprehensiveness.
Conclusions: Experience of individuals diagnosed with CRC must be considered in the definition, planning and execution of public policies for the control of CRC, as well as to the clinical practice, since all of them cannot vanish of the scene, whereas they are conceiving, witnessing, thinking and making clear those phenomena concerning to the very living of the disease.
Colonic neoplasms, qualitative research, personal narrative, hospital oncology service, developing countries, Colombiapaíses en desarrollo, Cáncer colorrectal, investigación cualitativa, narrativas personales, servicios de oncología, ColombiaCâncer colorretal, pesquisa qualitativa, narrativas pessoais, serviços de oncologia, , países em desenvolvimento, Colômbia
2. Abalo JAG. Dolor y sufrimiento al final de la vida: Arán Ediciones; 2006.
3. Ponce Gómez G, Mori FMLV. Adult everyday with colon cancer. Revista de Enfermería Neurológica. 2013;12(3):134-40.
4. Morson BC. Evolution of cancer of the colon and rectum. Cancer. 1974;34(S3):845-9.
5. Familia Tiburcio G, Meléndez Taveras IF. Hallazgos colonoscópicos en pacientes con resultados positivos y negativos en el test de sangre oculta en heces que acuden a la consulta de gastroenterología del Hospital Bienvenido Salvador Gautier, durante el periodo de noviembre 2019–abril 2020: Universidad Nacional Pedro Henríquez Ureña; 2020.
6. Majumdar SR, Fletcher RH, Evans AT. How does colorectal cancer present? Symptoms, duration, and clues to location. The American journal of gastroenterology. 1999;94(10):3039-45.
7. Figuero L, Tocino RV, Fonseca E, Cigarral B, Casado D, Barrios B, et al. Cáncer colorrectal. Medicine-Programa de Formación Médica Continuada Acreditado. 2021;13(24):1335-44.
8. Organización Panamericana de la Salud (OPS). Cáncer en las Américas, Perfiles de país. Washington2013.
9. Pardo Ramos C, De Vries E, Buitragoa L, Gambo Ó. Atlas de mortalidad por cáncer en Colombia. Bogota: Instituto Geográfico Agustín Codazzi (IGAC), Instituto Nacional de …; 2017.
10. Jimenez-Mora MA, Nieves-Barreto LD, Montaño-Rodríguez A, Betancourt-Villamizar EC, Mendivil CO. Association of Overweight, Obesity and Abdominal Obesity with Socioeconomic Status and Educational Level in Colombia. Diabetes, Metabolic Syndrome and Obesity: Targets and Therapy. 2020;13:1887.
11. Damsgaard JB. Phenomenology and hermeneutics as a basis for sensitivity within health care. Nursing Philosophy. 2021;22(1):e12338.
12. Martínez Miguélez M. Fundamentación epistemológica del enfoque centrado en la persona. POLIS, Revista Latinoamericana. 2006;5(15).
13. Curtis S, Gesler W, Smith G, Washburn S. Approaches to sampling and case selection in qualitative research: examples in the geography of health. Social science & medicine. 2000;50(7-8):1001-14.
14. Van Manen M. Linking ways of knowing with ways of being practical. Curriculum inquiry. 1977;6(3):205-28.
15. Creswell JW, Poth CN. Qualitative inquiry and research design: Choosing among five approaches: Sage publications; 2016.
16. Mollà RM, Bonet RMB, Climent CI. Propuesta de análisis fenomenológico de los datos obtenidos en la entrevista. Universitas Tarraconensis Revista de Ciències de l'Educació. 2010(1):113-33.
17. Minayo MCdS. La artesanía de la investigación cualitativa. La artesanía de la investigación cualitativa2009. p. 334-.
18. Ray MA. The richness of phenomenology: Philosophic, theoretic, and methodologic concerns. Critical issues in qualitative research methods. 1994:117-33.
19. Minayo MdS. La hermenéutica dialéctica. La Artesanía de la investigación cualitativa. 2009:268-94.
20. Weiser MR. AJCC 8th Edition: Colorectal Cancer. (1534-4681 (Electronic)).
21. Laplantine F. Antropologia de la Enfermedad: Estudio Etnologico de los Sistemas de Representaciones Etiologicas y Terapeuticas en la Sociedad Occidental Contempora: Ediciones del Sol; 1999.
22. Magaña D, Matlock T. How Spanish speakers use metaphor to describe their experiences with cancer. Discourse & Communication. 2018;12(6):627-44.
23. Luxardo N, Bengochea L. Cáncer y sociedad: Múltiples miradas, enfoques, recortes: Editorial Biblos; 2015.
24. Pini S, editor Resisting the'patient'body of the biomedical model: a performative account. Conference of the Australian Anthropological Society; 2018.
25. de Vries E, Arroyave I, Pardo EC, Wiesner C, Murillo R, Forman D, et al. Trends in inequalities in premature cancer mortality by educational level in Colombia, 1998-2007. Journal of Epidemiology & Community Health. 2015;69:408-15.
26. Caponi S. Georges Canguilhem y el estatuto epistemológico del concepto de salud. História, Ciências, Saúde-Manguinhos. 1997;4(2):287-307.
27. Luxardo N. Entre la narrativa y la vivencia: lecturas a partir del cáncer. Estudios sociales. 2008;4:95-114.
28. Frampton M, Houlston RS. Modeling the prevention of colorectal cancer from the combined impact of host and behavioral risk factors. Genetics in Medicine. 2017;19(3):314-21.
29. Arefpour A, Shojaei F, Hatami M, Mahdavi H. Prediction of resilience based on cognitive regulation of emotion and guilty feeling in women with breast cancer. Quarterly of Applied Psychology. 2020;13(4):509-26.
30. Zarcos-Pedrinaci I, Fernández-López A, Téllez T, Rivas-Ruiz F, Rueda A, Suarez-Varela MMM, et al. Factors that influence treatment delay in patients with colorectal cancer. Oncotarget. 2017;8(22):36728.
31. Martínez-Salgado C. El lugar del sujeto en el campo de la salud: enseñanzas de la investigación cualitativa. Ciênc saúde coletiva. 2014;19(4):1095–102.
32. Eslava M, Revolo MJ, Ortiz Jara RP. Diseño y Formulación de Subsidios a la Demanda de Energía Eléctrica en Colombia (Design and Formulation of Subsidies for Electricity Demand in Colombia). Documento CEDE. 2021(15).
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