Knowledge, Practices, Atti tudes and Opinions towards End of Life Care in Children , of Pediatric Healthcare Providers , at a General Hospital in Colombia
Published
Feb 12, 2018
Almetrics
Dimensions
Google Scholar
##plugins.themes.bootstrap3.article.details##
Abstract
Introduction: Concepts like Limitation of Therapeutic Effort (also known as End of Life Care [ELC]) are vital for daily practice. Objective: To identify the knowledge, practices, attitudes and opinions about ELC in a Pediatric service. Method: Descriptive observational cross-sectional study. Structured survey. Results: 121 surveys (80% of the population) were evaluated. 96% of the people know the term ELC, 91.5% have been in contact with at least one case, but only 25% consider having received training in the subject during their training, in 86% of cases the decision to ELC was taken in a multidisciplinary meeting or in conjunction with the family. Conclusions: Respondents are familiar with the term ELC, very few were trained during their training. We consider it necessary to develop educational tools and support with regard to pediatric palliative care for health personnel in charge of pediatric patients.
Keywords
palliative, knowledge, passive euthanasia, end of life carepaliativo; conocimiento; eutanasia pasiva; limitación del esfuerzo terapéutico.
References
1. Bogetz JF, Ullrich CK, Berry JG. Pediatric hospital care for children with life-threatening illness and the role of palliative care. Pediatr Clin North Am. 2014;61(4):719-33.
2. Aulino F, Foley K. Professional education in end-of-life care: a US perspective. J R Soc Med. 2001;94(9):472-6; discussion 7-8.
3. Martínez Hernández EB. Panorama actual de los cuidados paliativos pediátricos [internet]. Tesis de diplomado. Asociación Méxicana de Eduación Continua y a Distancia, Guanajuato, México; 2013. Disponible en: http://www.tanatologia-amtac.com/2013.
4. Khaneja S, Milrod B. Educational needs among pediatricians regarding caring for terminally ill children. Arch Pediatr Adolesc Med. 1998;152(9):909-14.
5. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics. 2000;106(2 Pt 1):351-7.
6. Flórez P, Tovar B, León M, Villegas K, Villamizar DdP, Granados CE. Knowledge of pediatric palliative care and perception of barriers by pediatricians and pediatric residents. Medipal. 2015;22(4):127-35.
7. Herreros B, Palacios G, Pacho E. [Limitation of the therapeutic effort]. Rev Clin Esp. 2012;212(3):134-40.
8. Ayestarán MA, Gea LB, Gordon AB, Arruabarrena EC, Otoño LE, Agirre AE, et al. Guía de práctica clínica sobre cuidados paliativos. En: Guías de práctica clínica en el SNS. Madrid: Agencia de Evaluación de Tecnologías Sanitarias del País Vasco; 2008.
9. Eijk WJ. Tratamiento proporcionado y desproporcionado, ensañamiento terapéutico y cuidado paliativo. Dolentium Hominum. 2005;58:79-85
10. Asociación Médica Mundial. Declaración de Venecia de la Asociación Médica Mundial sobre la Enfermedad Terminal [internet]. 2006. Disponible en: https://www.wma.net/es/policies-post/declaracion-de-venecia-de-la-amm-sobre-la-enfermedad-terminal/
11. R Development Core Team. R: A language and environment for statistical computing [Internet]. Vienna: R Foundation for Statistical Computing; 2011. Disponible en: http://www.R-project.org/.
12. Soler F, Pedrós F, Marín F, Ania MJ, Cambrón A, Alcázar JD, et al. Los derechos del niño. Revista DMD. 2012;11.
13. Brudney D, Lantos JD. Whose interests count? Pediatrics. 2014;134 Suppl 2:S78-80.
14. Delgado-Guay MO, Chisholm G, Williams J, Bruera E. The association between religiosity and resuscitation status preference among patients with advanced cancer. Palliat Support Care. 2015;13(5):1435-9.
15. Sullivan AM, Warren AG, Lakoma MD, Liaw KR, Hwang D, Block SD. End-of-life care in the curriculum: a national study of medical education deans. Acad Med. 2004;79(8):760-8.
16. González Cruz LR. Consideraciones sobre la limitación del esfuerzo terapéutico (LET) en pediatría [internet]. Bogotá: Universidad Nacional de Colombia; 2014. Disponible en: http://www.bdigital.unal.edu.co/12322/1/luisricardogonzalezcruz.2014.pdf
17. Chiu N, Cheon P, Lutz S, Lao N, Pulenzas N, Chiu L, et al. Inadequacy of palliative training in the medical school curriculum. J Cancer Educ. 2015;30(4):749-53.
18. Michelson KN, Ryan AD, Jovanovic B, Frader J. Pediatric residents' and fellows' perspectives on palliative care education. J Palliat Med. 2009;12(5):451-7.
19. Pastrana T, Wenk R, De Lima L. Consensus-based palliative care competencies for undergraduate nurses and physicians: A demonstrative process with Colombian universities. J Palliat Med. 2016;19(1):76-82.
20. Fortín Magaña M, Gómez Casanovas J, López Saca M. Situación actual de la enseñanza de la medicina paliativa en las universidades de Centroamérica. Educación Médica. 2016. doi: https://doi.org/10.1016/j.edumed.2016.08.00
2. Aulino F, Foley K. Professional education in end-of-life care: a US perspective. J R Soc Med. 2001;94(9):472-6; discussion 7-8.
3. Martínez Hernández EB. Panorama actual de los cuidados paliativos pediátricos [internet]. Tesis de diplomado. Asociación Méxicana de Eduación Continua y a Distancia, Guanajuato, México; 2013. Disponible en: http://www.tanatologia-amtac.com/2013.
4. Khaneja S, Milrod B. Educational needs among pediatricians regarding caring for terminally ill children. Arch Pediatr Adolesc Med. 1998;152(9):909-14.
5. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics. 2000;106(2 Pt 1):351-7.
6. Flórez P, Tovar B, León M, Villegas K, Villamizar DdP, Granados CE. Knowledge of pediatric palliative care and perception of barriers by pediatricians and pediatric residents. Medipal. 2015;22(4):127-35.
7. Herreros B, Palacios G, Pacho E. [Limitation of the therapeutic effort]. Rev Clin Esp. 2012;212(3):134-40.
8. Ayestarán MA, Gea LB, Gordon AB, Arruabarrena EC, Otoño LE, Agirre AE, et al. Guía de práctica clínica sobre cuidados paliativos. En: Guías de práctica clínica en el SNS. Madrid: Agencia de Evaluación de Tecnologías Sanitarias del País Vasco; 2008.
9. Eijk WJ. Tratamiento proporcionado y desproporcionado, ensañamiento terapéutico y cuidado paliativo. Dolentium Hominum. 2005;58:79-85
10. Asociación Médica Mundial. Declaración de Venecia de la Asociación Médica Mundial sobre la Enfermedad Terminal [internet]. 2006. Disponible en: https://www.wma.net/es/policies-post/declaracion-de-venecia-de-la-amm-sobre-la-enfermedad-terminal/
11. R Development Core Team. R: A language and environment for statistical computing [Internet]. Vienna: R Foundation for Statistical Computing; 2011. Disponible en: http://www.R-project.org/.
12. Soler F, Pedrós F, Marín F, Ania MJ, Cambrón A, Alcázar JD, et al. Los derechos del niño. Revista DMD. 2012;11.
13. Brudney D, Lantos JD. Whose interests count? Pediatrics. 2014;134 Suppl 2:S78-80.
14. Delgado-Guay MO, Chisholm G, Williams J, Bruera E. The association between religiosity and resuscitation status preference among patients with advanced cancer. Palliat Support Care. 2015;13(5):1435-9.
15. Sullivan AM, Warren AG, Lakoma MD, Liaw KR, Hwang D, Block SD. End-of-life care in the curriculum: a national study of medical education deans. Acad Med. 2004;79(8):760-8.
16. González Cruz LR. Consideraciones sobre la limitación del esfuerzo terapéutico (LET) en pediatría [internet]. Bogotá: Universidad Nacional de Colombia; 2014. Disponible en: http://www.bdigital.unal.edu.co/12322/1/luisricardogonzalezcruz.2014.pdf
17. Chiu N, Cheon P, Lutz S, Lao N, Pulenzas N, Chiu L, et al. Inadequacy of palliative training in the medical school curriculum. J Cancer Educ. 2015;30(4):749-53.
18. Michelson KN, Ryan AD, Jovanovic B, Frader J. Pediatric residents' and fellows' perspectives on palliative care education. J Palliat Med. 2009;12(5):451-7.
19. Pastrana T, Wenk R, De Lima L. Consensus-based palliative care competencies for undergraduate nurses and physicians: A demonstrative process with Colombian universities. J Palliat Med. 2016;19(1):76-82.
20. Fortín Magaña M, Gómez Casanovas J, López Saca M. Situación actual de la enseñanza de la medicina paliativa en las universidades de Centroamérica. Educación Médica. 2016. doi: https://doi.org/10.1016/j.edumed.2016.08.00
How to Cite
Córdoba Núñez, M. A., Guzmán Cruz, P. C., Arevalo O´Byrne, A. K., Corredor, Y. A., & Eraso Paz, I. C. (2018). Knowledge, Practices, Atti tudes and Opinions towards End of Life Care in Children , of Pediatric Healthcare Providers , at a General Hospital in Colombia. Universitas Medica, 59(1). https://doi.org/10.11144/Javeriana.umed59-1.letc
Issue
Section
Original Articles